In addition to the broad goal of simply raising awareness, we will be seeking change in the following four (4) sectors:
We believe that it’s crucial to work with four U.S. governmental institutes in particular – The National Institutes of Health (NIH), Centers for Disease Control (CDC), the Department of Health and Human Services, and the office of the Surgeon General – to effect the broad changes that are needed to overturn the status quo. Regarding the NIH, for example, we believe it’s imperative that the separate group which is dedicated exclusively to Endometriosis, Fibroids, and Chronic Pelvic Pain in Women be made much more visible to the public. Diabetes and other conditions have their own NIH-funded national television and print awareness campaigns; we believe the millions of women and girls suffering from endometriosis deserve the same.
We will be asking that the Department of Education help us launch nationwide health screening in public schools to screen for endometriosis and other chronic pelvic pain conditions that afflict girls. Public schools already screen for a variety of health conditions, such as scoliosis and hearing and vision impairments; we believe girls with endometriosis and related conditions, who are especially susceptible to misdiagnosis, deserve the same.
Even after numerous visits to their pediatricians, primary care physicians, gynecologists, school nurses, and emergency room practitioners, millions of women and girls with endometriosis, fibroids, and chronic pelvic pain are still going undiagnosed for several years or are receiving grossly inadequate care. This is truly unconscionable and constitutes a national health crisis. Our nation’s medical and nursing schools must do a better job of educating future physicians, nurses, nurse practitioners, and physician assistants. Therefore, we will be asking change at these public and private institutions. We will also be asking medical researchers to help us find cures and develop noninvasive tests for disorders that have been devastating millions of lives for thousands of years.
And, finally, we are holding this worldwide mass demonstration to raise awareness in the media and in our local communities. Media coverage about endometriosis, for example, is woefully inadequate. There have been many hour-long specials about obesity and diabetes featured on CNN, or on the cover of Time Magazine. However, we are still waiting for the same consideration to be given to the millions of women and girls who have had their lives torn apart by one of the most painful and crippling disorders ever catalogued in the history of humankind. We will also be reaching out to private foundations to consider supporting researchers so that a cure can be found and noninvasive screening tests can be developed.